We understand that living with cardiomyopathy can be challenging, but we want you to know that you are not alone. Our resources are designed to provide you with the information and support you need to manage your condition and thrive.
Young People
Knowing your Cardiomyopathy – Becoming independent
When you were a child, your parent or carer will have managed your cardiomyopathy, taking you to appointments, keeping up with treatment plans and knowing all there is to know about your condition and how it affects you.
As you get older, perhaps, you are moving away from home, going off to college, university or starting a new job. This can be a difficult time for parents to let go and working together, will be an important part of becoming independent.
You may have started this process at your hospital appointments through a transition programme.
Transitioning to adult care
Transitioning is when you start to move from the paediatric clinics into the adult clinics usually with a designated programme. Working with your healthcare team you devise a timeline for becoming independent in your care.
Part of this process is learning about your cardiomyopathy.
We’re here to help
Cardiomyopathy UK can help you with this. You can look into our valuable resource pages, speak to our Nurse specialists or reach out to other young people with cardiomyopathy. This will empower you and give you the added knowledge and confidence to grow.
Useful Factsheets
