Thriving with your child's cardiomyopathy

Woman and Child

An online programme for parents & carers of children with cardiomyopathy, hosted by trained counsellor Willow-Langdale Smith.

Each session will cover different aspects of how your child’s cardiomyopathy may impact your family life. The sessions will be run in small, supportive groups and are designed to help you feel more informed and empowered.

Register your interest

Have a question? Check out the FAQs section below!
 

 

FAQs

What topics are covered in the weekly sessions?
  • Social / well-being aspects of caring for a child with cardiomyopathy
     
  • Financial aspects of caring for a child with cardiomyopathy
     
  • Educational barriers & options
     
  • Personal reflection & self-care
Does my child have to be within a certain age range for me to take part?

This programme supports parents & carers of children & young people aged between 0 and 25.


To ensure that you get the maximum benefit from the programme, we aim to group parents & carers who have children of similar ages.

How often do the programmes take place?

We aim to run 3 programmes per calendar year (programmes take place over 2-4 weeks, with a session each week). 

To find out when the next programme is taking place (session dates and times), please register your interest via the red button further up this page.

Which online platform are the sessions hosted on?

All sessions are hosted via the charity’s password-protected professional Zoom account.

What qualifications does the programme leader have?

Willow Langdale-Smith (Dip Couns, BA, MSc MBACP) is a trained counsellor with several specialisms, including Neurodiversity & Special Educational Needs and Parent & Family Concerns.
 

Willow also has personal experience of caring for a child with cardiomyopathy.

Can my spouse/partner/co-parent/co-guardian attend too?

Yes, each programme accommodates up to 5 families, with each family consisting of up to 2 parents/guardians.

Do I need to take notes during sessions, or will I be provided with a pack?

Only if you find it helpful. Programme leader Willow will provide you with a comprehensive post-programme pack, which will recap everything covered in the weekly sessions, along with some additional material to support you further on your journey.