Volunteers are a special part of the Cardiomyopathy UK family. Below are the roles that we currently have available, but if you'd like to discuss how you can volunteer your time and skills in another way, we'd still love to hear from you.
To speak to us about volunteering, call us on 01494 791224 or email firstname.lastname@example.org.
Supporting people affected by cardiomyopathy
Our support groups give people diagnosed with cardiomyopathy and their loved ones the opportunity to find out more about their condition and to grow their support network. Our support groups enjoy regular meetings, with a mix of expert guest speakers and a strong community focus.
The aim of the Support Group Leader is to organise 6 meetings a year, with a range of guest speakers tailored to the needs of the group. You will receive full online training and continued support from the charity’s Community Peer Support Manager.
Our telephone peer support network matches people diagnosed with cardiomyopathy (or people supporting someone diagnosed with cardiomyopathy) with trained Telephone Peer Support Volunteers for one-to-one peer support over the phone.
The aim of the Telephone Peer Support Volunteer is to act as a kind, empathetic ear and to help the client by sharing their own experiences of living with cardiomyopathy. The role works on an ad-hoc basis, depending on the needs of the client/s requesting telephone peer support. You will receive full online training and continued support from the charity’s Community Peer Support Manager.
Our In-Clinic Peer Support Volunteers are typically attached to hospital cardiology departments and provide in-person peer support to outpatients at important junctures in their cardiomyopathy journey. For example, shortly after diagnosis or after being told that they need to have a device fitted.
The aim of the In-Clinic Peer Support Volunteer is to act as a kind, empathetic ear and to help the client by sharing their own experiences of living with cardiomyopathy. You will receive full online training and continued support from the charity’s Community Peer Support Manager.
Our Youth Panel are a group of young people aged 14-25 who each have their own unique experience of cardiomyopathy or myocarditis. They use their insight and empathy to help us to improve the information and support we offer to under 25s. The Youth Panel meet virtually four times a year and in between those times offer online and telephone support to other young people, as well as working on projects such as: transition support from children to adult services; social media promotion; event planning; and resource creation. Meet the Youth Panel.
Campaigning and research
Help us fight for better care and treatment. Change Makers improve the lives of people affected by cardiomyopathy by influencing people in the NHS to implement better cardiomyopathy policies. Just by talking to their local clinicians and joining discussions with other organisations, Change Makers help change healthcare services. Only with the help and voices of people affected by cardiomyopathy will we be able to improve healthcare services. Meet our Change Makers
Our Cardiomyopathy UK Research Insight Network is a group of people affected by cardiomyopathy and myocarditis who want to help shape research. The group share their views on different research projects to make sure they meet the needs of future patients and their families.
Once you have signed up, you will be contacted when research projects are looking for patient insights and input. Our Research Insight Network is flexible, allowing you to pick the opportunities and projects that interest you most.
The roar of the crowd really does help our Team Cardio runners over the finish line. We're looking for volunteers to give a big cheer to our runners at events like the London Marathon, Great North Run, Cardiff Half Marathon and Royal Parks Half Marathon. The atmosphere at these events is simply incredible and you'll have a fantastic day soaking up the buzz of positivity around you. We'll provide you with all the information you need, along with branded t-shirts and materials, so that your cheer point can stand out from the crowd.
We hold a post-race reception at the London Marathon to give our runners a big round of applause after they cross the finish line. We’re looking for volunteers to help us with setting up the event, stewarding and greeting runners from the finish line. If you’re interested in event management or simply want to be part of a fantastic celebration, enquire below or email email@example.com.
This is a varied role which can be adapted to your skills and availability. It's a fantastic way to gain administrative or charity experience and an opportunity to work with our friendly staff team. This role may involve helping our fundraising team send out materials to our wonderful fundraisers, assisting with our social media or supplying information packs to GPs and hospitals.