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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
      • Genetics and cardiomyopathy
      • Request an information pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
      • Peripartum cardiomyopathy
      • Restrictive (RCM)
      • Takotsubo
    • Related disorders
      • Arrhythmias
      • Cardiac amyloidosis
      • Myocarditis
      • Haemochromatosis
      • Sleep apnoea
      • Heart failure
        • Advanced heart failure
    • Treatments
      • Common types of medication
        • Herbal remedies, over-the-counter medicine and supplements
      • Having a device
      • Types of surgery
    • Information resources
      • Order information resources
      • Request resources for a hospital or GP
      • Look up a medical word
  • Living with cardiomyopathy
    • How we can help you
      • Speak to a nurse
      • Telephone peer support (Heart to Heart)
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        • Join a Facebook Group
        • Find a support group
          • Cardiac Amyloidosis (ATTR-CM) Online Support Group
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      • Find your volunteer role
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    • Stay in touch
      • Contact us
      • Read MyLife magazine
    • Donate
      • Shop
  • Newly diagnosed
    • What is cardiomyopathy?
    • Genetics and cardiomyopathy
    • Request an information pack
  • Types of cardiomyopathy
    • Arrhythmogenic (ACM)
    • Dilated (DCM)
    • Hypertrophic (HCM)
    • Left Ventricular Non-Compaction (LVNC)
    • Peripartum cardiomyopathy
    • Restrictive (RCM)
    • Takotsubo
  • Related disorders
    • Arrhythmias
    • Cardiac amyloidosis
    • Myocarditis
    • Haemochromatosis
    • Sleep apnoea
    • Heart failure
  • Treatments
    • Common types of medication
    • Having a device
    • Types of surgery
  • Information resources
    • Order information resources
    • Request resources for a hospital or GP
    • Look up a medical word
  • How we can help you
    • Speak to a nurse
    • Telephone peer support (Heart to Heart)
    • Support groups
    • Our podcast
    • Cardiomyopathy UK National Conference
  • Families and young people
    • Parents, caregivers and family members
    • Support for carers
    • Young People
  • Lifestyle and exercise
    • Eating healthily
    • Keeping active
  • Emotional wellbeing
    • Getting support with your wellbeing
  • Get practical support
    • Benefits and financial support
    • Driving
    • Life insurance
    • Returning to work and your rights
    • Travel insurance
  • Getting better treatment
    • Our Change Agenda
    • Change Makers
    • Cardiac screening
    • Our positions on policy
    • Our work with parliamentarians
  • Raising awareness
    • Awareness campaigns
    • Cardiomyopathy symptoms
    • Share your story
  • Understanding more
    • Our national survey
    • Our research
    • Research partnerships
    • Take part in research
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    • Find your volunteer role
    • Enquire about volunteering
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    • Contact us
    • Read MyLife magazine
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Here for everyone affected by cardiomyopathy

What is cardiomyopathy?

Cardiomyopathy is a disease of the heart muscle: 'cardio’ means heart, ‘myo’ means muscle and ‘pathy’ means disease.

It isn’t a single condition, but a group of conditions that affect the structure of the heart and reduce its ability to pump blood around the body. Around 1 in 250 people in the UK are affected. 

Learn More
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Search for information on a type of cardiomyopathy here.
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Living with cardiomyopathy
We're here for you. Find advice and information on how to live well with cardiomyopathy.
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Take on a challenge
Join #TeamCardio and take on a challenge for Cardiomyopathy UK
Find out more
  • News
  • Events
  • Support Groups 08 May 2025
    May Support Group Meetings
    Here you can find all the support group meetings we're holding in May. Our Groups This Month
    Read on
  • News 09 April 2025
    Mavacamten - one year on
    Mavacamten is a new drug for hypertrophic cardiomyopathy with obstruction (HOCM), approved for use
    Read on
  • News 25 February 2025
    Boston scientific CRT-P recall
    If you or someone you know has a Boston Scientific pacemaker or cardiac resynchronisation device
    Read on
  • From
    1
    Jan
    2023
    Group of runners posing for photo with their medals
    Running
    Local events
    Run for people affected by cardiomyopathy and represent #TeamCardio in your local area. We have access to over 300 local events from 5ks and fun runs
    Read on
  • From
    1
    Jan
    2024
    A man bungee jumping
    Skydiving
    Bungee Jumps
    Looking for an adrenaline rush? Tick bungee jumping off your bucket list! Tick something off your bucket list and sign up for a bungee jump in support
    Read on
  • From
    1
    Jan
    2025
    Part of the walk for the Jurassic Coast
    Walks and Treks
    Ultra Challenge Series 2025
    Join one of the Ultra Series Challenges in 2025. Choose from one of the inspirational 18 events across the UK, distances range from 10km to 100km and
    Read on
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About cardiomyopathy

  • Newly diagnosed
  • Treatments

Living with cardiomyopathy

  • Emotional wellbeing
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  • Raising awareness

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Cardiomyopathy UK, 75a Woodside Road, Amersham, Buckinghamshire, HP6 6AA United Kingdom
Office: 01494 791224    Helpline: 0800 018 1024    Email: contact@cardiomyopathy.org

Cardiomyopathy UK is registered as a charity in England and Wales (no. 1164263) and in Scotland (no. SC053398)
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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
      • Genetics and cardiomyopathy
      • Request an information pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
      • Peripartum cardiomyopathy
      • Restrictive (RCM)
      • Takotsubo
    • Related disorders
      • Arrhythmias
      • Cardiac amyloidosis
      • Myocarditis
      • Haemochromatosis
      • Sleep apnoea
      • Heart failure
        • Advanced heart failure
    • Treatments
      • Common types of medication
        • Herbal remedies, over-the-counter medicine and supplements
      • Having a device
      • Types of surgery
    • Information resources
      • Order information resources
      • Request resources for a hospital or GP
      • Look up a medical word
  • Living with cardiomyopathy
    • How we can help you
      • Speak to a nurse
      • Telephone peer support (Heart to Heart)
      • Support groups
        • Join a Facebook Group
        • Find a support group
          • Cardiac Amyloidosis (ATTR-CM) Online Support Group
          • ARVC (inc. ALVC & ACM) Online Support Group
          • Advanced Heart Failure (Towards Transplant) Online Support Group
          • Cardiomyopathy With Atrial Fibrillation Online Support Group
          • Birmingham & West Midlands Support Group
          • Bridgend Support Group
          • Bristol & Surrounds Support Group
          • Central London Support Group
          • Cheshire & Merseyside Support Group
          • Coffee & Catch Up
          • CRT Devices Online Support Group
          • DCM Online Support Group
          • Devon Support Group
          • East Anglia Support Group
          • East London Support Group
          • Genetics & Cardiomyopathy Online Support Group
          • Hampshire Support Group
          • HCM Online Support Group
          • Hertfordshire & West Essex Support Group
          • ICD Online Support Group
          • Kent Support Group
          • LVNC/Hypertrabeculation Online Support Group
          • Leeds & York Support Group
          • Loved Ones Online Support Group
          • Manchester Support Group
          • Medications & Cardiomyopathy Online Support Group
          • North East Support Group
          • North London Support Group
          • North & North East Scotland Support Group
          • Northern Ireland Support Group
          • PPCM Online Support Group
          • Sheffield & South Yorkshire Support Group
          • South East Wales PPCM Support Group
          • South London Support Group
          • Staffordshire Support Group
          • Sussex Support Group
          • Swansea Support Group
          • Takotsubo Online Support Group
          • West London (including Surrey & Middlesex) Support Group
          • West Scotland Support Group
        • Become a support group leader
      • Our podcast
      • Cardiomyopathy UK National Conference
    • Families and young people
      • Parents, caregivers and family members
      • Support for carers
      • Young People
        • Starting a new job
        • Transitioning to adult care
        • Starting university or college
        • Support for you
        • Our Youth Panel
    • Lifestyle and exercise
      • Eating healthily
      • Keeping active
    • Emotional wellbeing
      • Getting support with your wellbeing
    • Get practical support
      • Benefits and financial support
        • Benefits
        • Cost of living
        • Financial support if your work is affected
      • Driving
      • Life insurance
      • Returning to work and your rights
      • Travel insurance
  • Our research & campaigns
    • Getting better treatment
      • Our Change Agenda
      • Change Makers
      • Cardiac screening
      • Our positions on policy
      • Our work with parliamentarians
    • Raising awareness
      • Awareness campaigns
      • Cardiomyopathy symptoms
      • Share your story
    • Understanding more
      • Our national survey
      • Our research
      • Research partnerships
        • CureHeart
        • Crucial Study
      • Take part in research
        • BRITISH Study
        • MyClimb Study
      • Future research priorities
      • For researchers
        • Research grants
  • Support us
    • Fundraise
      • Take on a challenge
        • Aberdeen Kiltwalk 2025
        • Chiltern 50 Ultra Challenge
        • Cotswold Way Ultra Challenge
        • Drayton Manor 5K & 10K
        • Edinburgh Kiltwalk 2025
        • Great Manchester Run Half Marathon 2025
        • Hampton Court Palace 10K
        • London 2 Brighton Ultra Challenge
        • Oxford Half Marathon 2025
        • Peak District Ultra Challenge
        • Run Alton Towers 5k & 10k
        • Run Thorpe Park 5k
        • Skydive in Brigg
        • South Coast Ultra Challenge
        • TCS London Marathon 2026
        • Thames Bridges Trek
        • Thames Path Challenge 2025
        • Ultra Challenge Series 2025
        • Walk with your Heart
        • 2024 Wolverhampton 10k
        • ASICS London 10k
        • Adidas Manchester Marathon
        • BHF London to Brighton Bike Ride 2024
        • Birmingham Running Festival
        • Bournemouth Half Marathon
        • Brighton Marathon 2026
        • Bungee Jumps
        • Cardiff Half Marathon 2023
        • Chase the Sun 5k & 10k
        • Cotswold Way Challenge
        • Great North Run
        • Hackney Half 2021
        • Hackney Half 2024
        • Hampton Court Palace Half
        • Inflatable 2.5k - 5k - 10k - 15k
        • Isle of Wight challenge
        • Jurassic Coast Challenge
        • Glasgow Kiltwalk 2025
        • London Landmarks Half Marathon 2026
        • London Winter Walk 2024
        • London to Brighton Challenge
        • London to Paris
        • Manchester Half Marathon
        • National Three Peaks Challenge
        • Paris Marathon 2025
        • Peak District Challenge
        • Royal Parks Half Marathon
        • Run Bournemouth 2025
        • Run Locally
        • Run Solihull 2023
        • Sheffield 10k
        • Santa in the City 2023
        • Skydives
        • South Coast Challenge
        • Supernova London
        • Thames Path Challenge
        • Thames Path Challenge
        • Warwick Half Marathon 2024
        • Yorkshire Three Peaks
      • Do your own thing
        • Fundraising Made Simple
        • Fundraising Resources
        • 30-Day Challenge
        • Celebrate a special occasion
        • Bake a Difference
          • Bake a Difference at Home
          • Bake a Difference at School
          • Bake a Difference at Work
      • Give in memory
        • Create a Tribute Page
        • Funeral collections
        • Grief Support
      • Become a corporate partner
      • Clubs and Societies
      • Give a gift in your Will
      • Cardiomyopathy research appeal
    • Volunteer
      • Find your volunteer role
      • Enquire about volunteering
    • Stay in touch
      • Contact us
      • Read MyLife magazine
    • Donate
      • Shop
  • About us
    • Our impact
    • Our approach
    • Our five year strategy
    • Work for us
    • Our people
  • For professionals
  • News & blogs
    • Latest news
      • "I have so much gratitude for my health, and for the sheer joy of running"
      • 12 Days of Christmas Challenge
      • 2021 ESC Guidelines updates for heart failure
      • A 25th anniversary for Patricia's heart transplant
      • A Bright Future Together
      • A Good Night's Sleep
      • A Statement on Evusheld
      • Amy's story: friendship, peer support and climbing mountains
      • An Update on Mavacamten
      • Are you ready for a challenge?
      • Autumn 2022 Covid booster
      • Autumn 2023 Covid 19 Booster vaccination
      • Autumn 2024 COVID-19 Booster Vaccination
      • Beating For Two
      • Becoming a research funder
      • Boston scientific CRT-P recall
      • Cardiomyopathy UK announces the appointment of new CEO, Anna Tomlinson
      • Cardiomyopathy and the COVID-19 Vaccination
      • Cardiomyopathy and the COVID-19 Vaccine
      • Cardiomyopathy and the menopause
      • Celebrating three years of Coffee & Catch Up
      • Change the World of Cardiomyopathy - Our Urgent Appeal
      • Charity’s Update on COVID-19
      • Charlie's Story
      • Charlotte's Story
      • Chloe's Story
      • Christian Eriksen's cardiac arrest
      • Claire's Story
      • Cold weather
      • Coping With Tiredness and Fatigue
      • Coping with stress and your mental wellbeing
      • Coronavirus - update on our policies and services
      • Coronavirus Update
      • Coronavirus Update
      • Coronavirus
      • Covid-19 mRNA vaccines statement
      • CureHeart
      • Dougie and Pete - The Marathon des Sables
      • Emily's Story
      • Fasting During Ramadan
      • Fiona's Story
      • Getting your flu vaccine
      • Good luck Team Scouse - Remembering Alex ‘Scouse’ Pickett
      • Green light for first Cardiomyopathy Drug
      • Gwen's story
      • Happy Volunteers' Week!
      • Hay fever and cardiomyopathy
      • How To Cope In Warmer Weather
      • How peer support can help you feel better with cardiomyopathy
      • International Womens Day - celebrating our founder
      • Introducing our new trustee, Libby Jarman
      • Jaana's Story
      • Jamie's Story
      • Jane's Story
      • Jane's Story
      • Jazmin's 30-day Challenge
      • John's Story
      • Karen's 30 Day Home Challenge
      • Karen's Story
      • Karen's Story
      • Kyren's Story
      • Lauren's Story
      • Lisa's Story
      • Lucy's Story
      • Mark's Story
      • Marty's Story
      • Mavacamten - one year on
      • Mavacamten for Obstructive HCM approved for Scotland
      • Meet Tash
      • NICE recommends Mavacamten for Obstructive HCM in new draft guidance
      • NICE releases draft guidance for new treatment for chronic heart failure
      • Natriuretic Peptides
      • New Guidelines on Management of Cardiomyopathy
      • New Heart Hive research on the effect of COVID-19 on people with Cardiomyopathy
      • New smartphone can interfere with ICD’s and pacemakers
      • Organ Donation Week
      • Organ Donation Week-'June and I count our blessings every day'
      • Organ Donation in England
      • Our 30 Day Home Challenge Journeys
      • Our Support Group Meetings This Month
      • Our latest My Life magazine!
      • Paige's Story
      • Paul's guaranteed to get a runner's high
      • Positive results for new HCM drug
      • Queen's Birthday Honours list for Alison Fielding
      • Royal Pharmaceutical Society calls for Government action to tackle medicines shortages
      • Ruby's Story
      • Scotland gives green light for new cardiomyopathy drug
      • September Steps 2021 - Jodie's Story
      • Sophie's Story
      • Steph's story
      • Stephen's Story
      • Sue's Story
      • Tafamidis approved by NICE
      • The top ten research priorities for cardiomyopathy published
      • Third Place for Hollis in Himalayan 100 Challenge
      • Tim's Story
      • Tina's Story
      • Tony's Story
      • Tracy's Story
      • Walking 500 miles for Jenny
      • Weight loss injections
      • What to do if you can't get a GP appointment
      • Why you should give regularly
      • Wireless in-heart device
      • Working in Scotland
      • Zai's Story
      • clone of John's story
    • Tips and Advice
      • Amiodarone
      • Coping with a diagnosis of cardiomyopathy
      • Coping with the cold weather
      • Exercise in Children
      • Finding the right Travel Insurance
      • Free Vitamin D
      • Healthy Eating
      • ICD's- Your Questions Answered
      • Ischaemic Cardiomyopathy
      • Myocarditis in children
      • Smoking
      • Tips and Advice
      • What does Ischaemic Cardiomyopathy mean?
      • What is Cardiac Remodelling?
    • Media contact
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