Skip to main content
Genetic and Nurse Helpline
0800 018 1024
Menu
Donate
Search
Youth hub
Header - Menu
About us
For professionals
News & blogs
Shop
Search
Donate
About cardiomyopathy
Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Advanced heart failure
Treatments
Common types of medication
Herbal remedies, over-the-counter medicine and supplements
Having a device
Support in Advanced Stages
Types of surgery
Information resources
Download Now
PIF TICK Accreditation
Request resources for a hospital or GP
Look up a medical word
Living with cardiomyopathy
How we can help you
Speak to a nurse
Genetic advice helpline
Telephone peer support (Heart to Heart)
Support groups
Join a Facebook Group
Find a support group
Cardiac Amyloidosis (ATTR-CM) Online Support Group
ARVC (inc. ALVC & ACM) Online Support Group
Advanced Heart Failure (Towards Transplant) Online Support Group
Cardiomyopathy With Atrial Fibrillation Online Support Group
Birmingham & West Midlands Support Group
Bridgend Support Group
Bristol & Surrounds Support Group
Cheshire & Merseyside Support Group
Coffee & Catch Up
CRT Devices Online Support Group
DCM Online Support Group
East London Support Group
Genetics & Cardiomyopathy Online Support Group
HCM Online Support Group
ICD Online Support Group
Kent Support Group
LVNC/Hypertrabeculation Online Support Group
Leeds & York Support Group
Manchester Support Group
Medications & Cardiomyopathy Online Support Group
Mid Wales Support Group (Grŵp Cymorth Canolbarth Cymru)
North East Support Group
North London Support Group
North & North East Scotland Support Group
Northern Ireland Support Group
Nottinghamshire Support Group
PPCM Online Support Group
Plymouth & Surrounds Support Group
Sheffield & South Yorkshire Support Group
South East Wales PPCM Support Group
South London Support Group
Sussex Support Group
Swansea Support Group
Takotsubo Online Support Group
West Scotland Support Group
Become a support group leader
Cardiomyopathy UK National Conference
Families and young people
Parents, Carers and Families
Support for carers
Youth Hub
Starting a new job
Transitioning to adult care
Starting university or college
Support for you
Our Youth Advisory Board
Online support programme for Parents & Guardians
Lifestyle and exercise
Eating healthily
Keeping active
Emotional wellbeing
Getting support with your wellbeing
Get practical support
Benefits and financial support
Benefits
Cost of living
Financial support if your work is affected
Driving
Life insurance
Returning to work and your rights
Travel insurance
Our research & campaigns
Getting better treatment
Our national survey
Our Change Agenda
Change Makers
Cardiac screening
Our positions on policy
Our work with parliamentarians
Raising awareness
Awareness campaigns
Cardiomyopathy symptoms
Share your story
Understanding more
Our research
Research partnerships
CureHeart
Crucial Study
Take part in research
BRITISH Study
MyClimb Study
Future research priorities
For researchers
Research grants
Support us
Fundraise
Take on a challenge
Aberdeen Kiltwalk 2025
Chiltern 50 Ultra Challenge
Drayton Manor 5K & 10K
Edinburgh Kiltwalk 2025
Great Manchester Run Half Marathon 2025
Hampton Court Palace 10K
Kent Downs Ultra Challenge
London 2 Brighton Ultra Challenge
Peak District Ultra Challenge
Run Alton Towers 5k & 10k
Run Thorpe Park 5k
Skydive in Brigg
TCS London Marathon 2027
Thames Bridges Trek
Thames Path Challenge 2025
Ultra Challenge Halloween Walk
Ultra Challenge Series 2025
Walk With Your Heart
2024 Wolverhampton 10k
ASICS London 10k
Manchester Marathon 2027
BHF London to Brighton Bike Ride 2024
Bath Half Marathon 2027
Birmingham Running Festival
Bournemouth Half Marathon
Brighton Marathon 2027
Bungee Jumps
Cardiff Half Marathon 2026
Chase the Sun 5k & 10k
Cotswold Way Challenge
Hackney Half 2021
Hampton Court Palace Half
Inflatable 2.5k - 5k - 10k - 15k
Isle of Wight challenge
Jurassic Coast Challenge
Glasgow Kiltwalk 2025
London Landmarks Half Marathon 2027
London Winter Walk 2024
London to Brighton Challenge
London to Paris
Manchester Half Marathon
National Three Peaks Challenge
Peak District Challenge
Royal Parks Half Marathon
Run Bournemouth 2025
Run Solihull 2023
Santa in the City 2023
Skydives
South Coast Challenge
Supernova London
Thames Path Challenge
Thames Path Challenge
Warwick Half Marathon 2024
Yorkshire Three Peaks
Do your own thing
Fundraising Made Simple
Fundraising Resources
30-Day Challenge
Celebrate a special occasion
Bake a Difference
Bake a Difference at Home
Bake a Difference at School
Bake a Difference at Work
Give in memory
Create a Tribute Page
Funeral collections
Grief Support
Become a corporate partner
Clubs and Societies
Cardiomyopathy research appeal
Volunteer
Find your volunteer role
Enquire about volunteering
Stay in touch
Contact us
Read MyLife magazine
Donate
Shop
Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Treatments
Common types of medication
Having a device
Support in Advanced Stages
Types of surgery
Information resources
Download Now
PIF TICK Accreditation
Request resources for a hospital or GP
Look up a medical word
How we can help you
Speak to a nurse
Genetic advice helpline
Telephone peer support (Heart to Heart)
Support groups
Cardiomyopathy UK National Conference
Families and young people
Parents, Carers and Families
Support for carers
Youth Hub
Online support programme for Parents & Guardians
Lifestyle and exercise
Eating healthily
Keeping active
Emotional wellbeing
Getting support with your wellbeing
Get practical support
Benefits and financial support
Driving
Life insurance
Returning to work and your rights
Travel insurance
Getting better treatment
Our national survey
Our Change Agenda
Change Makers
Cardiac screening
Our positions on policy
Our work with parliamentarians
Raising awareness
Awareness campaigns
Cardiomyopathy symptoms
Share your story
Understanding more
Our research
Research partnerships
Take part in research
Future research priorities
For researchers
Fundraise
Take on a challenge
Do your own thing
Give in memory
Become a corporate partner
Clubs and Societies
Inaccessible
Cardiomyopathy research appeal
Volunteer
Find your volunteer role
Enquire about volunteering
Stay in touch
Contact us
Read MyLife magazine
Donate
Shop
Breadcrumb
Home
About us
Our people
Alexandra Holmes
Alexandra Holmes
Policy Manager
Back to Our people
About cardiomyopathy
Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Advanced heart failure
Treatments
Common types of medication
Herbal remedies, over-the-counter medicine and supplements
Having a device
Support in Advanced Stages
Types of surgery
Information resources
Download Now
PIF TICK Accreditation
Request resources for a hospital or GP
Look up a medical word
Living with cardiomyopathy
How we can help you
Speak to a nurse
Genetic advice helpline
Telephone peer support (Heart to Heart)
Support groups
Join a Facebook Group
Find a support group
Cardiac Amyloidosis (ATTR-CM) Online Support Group
ARVC (inc. ALVC & ACM) Online Support Group
Advanced Heart Failure (Towards Transplant) Online Support Group
Cardiomyopathy With Atrial Fibrillation Online Support Group
Birmingham & West Midlands Support Group
Bridgend Support Group
Bristol & Surrounds Support Group
Cheshire & Merseyside Support Group
Coffee & Catch Up
CRT Devices Online Support Group
DCM Online Support Group
East London Support Group
Genetics & Cardiomyopathy Online Support Group
HCM Online Support Group
ICD Online Support Group
Kent Support Group
LVNC/Hypertrabeculation Online Support Group
Leeds & York Support Group
Manchester Support Group
Medications & Cardiomyopathy Online Support Group
Mid Wales Support Group (Grŵp Cymorth Canolbarth Cymru)
North East Support Group
North London Support Group
North & North East Scotland Support Group
Northern Ireland Support Group
Nottinghamshire Support Group
PPCM Online Support Group
Plymouth & Surrounds Support Group
Sheffield & South Yorkshire Support Group
South East Wales PPCM Support Group
South London Support Group
Sussex Support Group
Swansea Support Group
Takotsubo Online Support Group
West Scotland Support Group
Become a support group leader
Cardiomyopathy UK National Conference
Families and young people
Parents, Carers and Families
Support for carers
Youth Hub
Starting a new job
Transitioning to adult care
Starting university or college
Support for you
Our Youth Advisory Board
Online support programme for Parents & Guardians
Lifestyle and exercise
Eating healthily
Keeping active
Emotional wellbeing
Getting support with your wellbeing
Get practical support
Benefits and financial support
Benefits
Cost of living
Financial support if your work is affected
Driving
Life insurance
Returning to work and your rights
Travel insurance
Our research & campaigns
Getting better treatment
Our national survey
Our Change Agenda
Change Makers
Cardiac screening
Our positions on policy
Our work with parliamentarians
Raising awareness
Awareness campaigns
Cardiomyopathy symptoms
Share your story
Understanding more
Our research
Research partnerships
CureHeart
Crucial Study
Take part in research
BRITISH Study
MyClimb Study
Future research priorities
For researchers
Research grants
Support us
Fundraise
Take on a challenge
Aberdeen Kiltwalk 2025
Chiltern 50 Ultra Challenge
Drayton Manor 5K & 10K
Edinburgh Kiltwalk 2025
Great Manchester Run Half Marathon 2025
Hampton Court Palace 10K
Kent Downs Ultra Challenge
London 2 Brighton Ultra Challenge
Peak District Ultra Challenge
Run Alton Towers 5k & 10k
Run Thorpe Park 5k
Skydive in Brigg
TCS London Marathon 2027
Thames Bridges Trek
Thames Path Challenge 2025
Ultra Challenge Halloween Walk
Ultra Challenge Series 2025
Walk With Your Heart
2024 Wolverhampton 10k
ASICS London 10k
Manchester Marathon 2027
BHF London to Brighton Bike Ride 2024
Bath Half Marathon 2027
Birmingham Running Festival
Bournemouth Half Marathon
Brighton Marathon 2027
Bungee Jumps
Cardiff Half Marathon 2026
Chase the Sun 5k & 10k
Cotswold Way Challenge
Hackney Half 2021
Hampton Court Palace Half
Inflatable 2.5k - 5k - 10k - 15k
Isle of Wight challenge
Jurassic Coast Challenge
Glasgow Kiltwalk 2025
London Landmarks Half Marathon 2027
London Winter Walk 2024
London to Brighton Challenge
London to Paris
Manchester Half Marathon
National Three Peaks Challenge
Peak District Challenge
Royal Parks Half Marathon
Run Bournemouth 2025
Run Solihull 2023
Santa in the City 2023
Skydives
South Coast Challenge
Supernova London
Thames Path Challenge
Thames Path Challenge
Warwick Half Marathon 2024
Yorkshire Three Peaks
Do your own thing
Fundraising Made Simple
Fundraising Resources
30-Day Challenge
Celebrate a special occasion
Bake a Difference
Bake a Difference at Home
Bake a Difference at School
Bake a Difference at Work
Give in memory
Create a Tribute Page
Funeral collections
Grief Support
Become a corporate partner
Clubs and Societies
Cardiomyopathy research appeal
Volunteer
Find your volunteer role
Enquire about volunteering
Stay in touch
Contact us
Read MyLife magazine
Donate
Shop
About us
Our impact
Our approach
Our five year strategy
Work for us
Our people
For professionals
News & blogs
Latest news
"I have so much gratitude for my health, and for the sheer joy of running"
10 Tips to manage in Warmer weather
12 Days of Christmas Challenge
2021 ESC Guidelines updates for heart failure
2026 Catalyst Grants applications are now open!
A 25th anniversary for Patricia's heart transplant
A Bright Future Together
A Good Night's Sleep
A Statement on Evusheld
A new 10-year plan for heart disease and stroke in England
ACE goes digital: proven psychological support, for more people
Aficamten to offer more choice for people living with obstructive HCM
Amy's story: friendship, peer support and climbing mountains
An Update on Mavacamten
Are you ready for a challenge?
Autumn 2022 Covid booster
Autumn 2023 Covid 19 Booster vaccination
Autumn 2024 COVID-19 Booster Vaccination
Beating For Two
Becoming a research funder
Boston scientific CRT-P recall
Cardiomyopathy UK announces the appointment of new CEO, Anna Tomlinson
Cardiomyopathy UK awards our first ever research grants!
Cardiomyopathy UK welcomes new leadership
Cardiomyopathy and the COVID-19 Vaccination
Cardiomyopathy and the COVID-19 Vaccine
Cardiomyopathy and the menopause
Catalyst grants
Celebrating three years of Coffee & Catch Up
Change the World of Cardiomyopathy - Our Urgent Appeal
Charity’s Update on COVID-19
Charlie's Story
Charlotte's Story
Chloe's Story
Christian Eriksen's cardiac arrest
Claire's Story
Cold weather
Coping With Tiredness and Fatigue
Coping with stress and your mental wellbeing
Coronavirus - update on our policies and services
Coronavirus Update
Coronavirus Update
Coronavirus
Covid-19 mRNA vaccines statement
CureHeart Labs visit?
CureHeart
Dougie and Pete - The Marathon des Sables
Electric day, big impact: Team Cardio smashes £13,000 at the GNR
Emily's Story
Energy Conservation with Cardiomyopathy
Fasting During Ramadan
Fiona's Story
Getting your flu vaccine
Good luck Team Scouse - Remembering Alex ‘Scouse’ Pickett
Green light for first Cardiomyopathy Drug
Gwen's story
Happy Volunteers' Week!
Hay fever and cardiomyopathy
How peer support can help you feel better with cardiomyopathy
How to manage in cold weather
Important Update: Proposed Changes to Disability Benefits
In Memory of Alison Fielding BEM
International Nurses Day 2026: Updates from our cardiomyopathy nurse team
International Womens Day - celebrating our founder
Introducing our new trustee, Libby Jarman
Jaana's Story
James Eder's Journey
Jamie's Story
Jane's Story
Jane's Story
Jazmin's 30-day Challenge
John's Story
Karen's 30 Day Home Challenge
Karen's Story
Karen's Story
Kyren's Story
Lauren's Story
Lisa's Story
Lucy's Story
Mark's Story
Marty's Story
Mavacamten - one year on
Mavacamten for Obstructive HCM approved for Scotland
Mavacamten on the NHS: What our research tells us
Meet Tash
Menopause and Cardiomyopathy with Dr Paz Tayal
NICE recommends Mavacamten for Obstructive HCM in new draft guidance
NICE recommends acoramidis as an option for adults living with ATTR-CM
NICE releases draft guidance for new treatment for chronic heart failure
Natriuretic Peptides
New Guidelines on Management of Cardiomyopathy
New Heart Hive research on the effect of COVID-19 on people with Cardiomyopathy
New guidelines on digital platforms to support cardiac rehabilitation
New partnership with Marie Curie: palliative care, explained and accessible
New smartphone can interfere with ICD’s and pacemakers
New treatment for patients with ATTR-CM recommended by NICE
Organ Donation Week - Jim's Story
Organ Donation Week
Organ Donation Week-'June and I count our blessings every day'
Organ Donation in England
Our 30 Day Home Challenge Journeys
Our Support Group Meetings This Month
Our latest My Life magazine!
Paige's Story
Paul's guaranteed to get a runner's high
Positive results for new HCM drug
Queen's Birthday Honours list for Alison Fielding
Ramadan and cardiomyopathy: fasting safely
Reassurance when it matters: introducing our Genetic Advice Helpline
Results of the Photography Competition 2026
Royal Pharmaceutical Society calls for Government action to tackle medicines shortages
Ruby's Story
Scotland gives green light for new cardiomyopathy drug
September Steps 2021 - Jodie's Story
Sick day rules for Heart failure medication
Sophie's Story
Steph's story
Stephen Kirkham elected as new chair of Cardiomyopathy UK
Stephen's Story
Sue's Story
Tafamidis approved by NICE
The NHS 10 year Plan
The top ten research priorities for cardiomyopathy published
Third Place for Hollis in Himalayan 100 Challenge
Three ways to #BuildFutureYou this Youth Mental Health Day
Thriving Together in Leeds: a day of expert advice and shared experience
Tim's Story
Tina's Story
Tony's Story
Tracy's Story
Walking 500 miles for Jenny
Weight loss injections
What Is Cardiac Troponin?
What to do if you can't get a GP appointment
What to do if you can't get a GP appointment
Why you should give regularly
Wireless in-heart device
Working in Scotland
World Mental Health Day
Zai's Story
clone of John's story
Tips and Advice
Amiodarone
Coping with a diagnosis of cardiomyopathy
Exercise in Children
Finding the right Travel Insurance
Free Vitamin D
Healthy Eating
ICD's- Your Questions Answered
Ischaemic Cardiomyopathy
Myocarditis in children
Smoking
Tips and Advice
What does Ischaemic Cardiomyopathy mean?
What is Cardiac Remodelling?
Media contact
Shop
Search
Donate