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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
      • Genetics and cardiomyopathy
      • Request an information pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
      • Peripartum cardiomyopathy
      • Restrictive (RCM)
      • Takotsubo
    • Related disorders
      • Arrhythmias
      • Cardiac amyloidosis
      • Myocarditis
      • Haemochromatosis
      • Sleep apnoea
      • Heart failure
        • Advanced heart failure
    • Treatments
      • Common types of medication
        • Herbal remedies, over-the-counter medicine and supplements
      • Having a device
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      • Order information resources
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    • Donate
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  • Newly diagnosed
    • What is cardiomyopathy?
    • Genetics and cardiomyopathy
    • Request an information pack
  • Types of cardiomyopathy
    • Arrhythmogenic (ACM)
    • Dilated (DCM)
    • Hypertrophic (HCM)
    • Left Ventricular Non-Compaction (LVNC)
    • Peripartum cardiomyopathy
    • Restrictive (RCM)
    • Takotsubo
  • Related disorders
    • Arrhythmias
    • Cardiac amyloidosis
    • Myocarditis
    • Haemochromatosis
    • Sleep apnoea
    • Heart failure
  • Treatments
    • Common types of medication
    • Having a device
    • Types of surgery
  • Information resources
    • Order information resources
    • Request resources for a hospital or GP
    • Look up a medical word
  • How we can help you
    • Speak to a nurse
    • Telephone peer support (Heart to Heart)
    • Support groups
    • Our podcast
    • Cardiomyopathy UK National Conference
  • Families and young people
    • Parents, caregivers and family members
    • Support for carers
    • Young People
  • Lifestyle and exercise
    • Eating healthily
    • Keeping active
  • Emotional wellbeing
    • Getting support with your wellbeing
  • Get practical support
    • Benefits and financial support
    • Driving
    • Life insurance
    • Returning to work and your rights
    • Travel insurance
  • Getting better treatment
    • Our Change Agenda
    • Change Makers
    • Cardiac screening
    • Our positions on policy
    • Our work with parliamentarians
  • Raising awareness
    • Awareness campaigns
    • Cardiomyopathy symptoms
    • Share your story
  • Understanding more
    • Our national survey
    • Our research
    • Research partnerships
    • Take part in research
    • Future research priorities
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  • Fundraise
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Cardiomyopathy UK, 75a Woodside Road, Amersham, Buckinghamshire, HP6 6AA United Kingdom
Office: 01494 791224    Helpline: 0800 018 1024    Email: contact@cardiomyopathy.org

Cardiomyopathy UK is registered as a charity in England and Wales (no. 1164263) and in Scotland (no. SC053398)
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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
      • Genetics and cardiomyopathy
      • Request an information pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
      • Peripartum cardiomyopathy
      • Restrictive (RCM)
      • Takotsubo
    • Related disorders
      • Arrhythmias
      • Cardiac amyloidosis
      • Myocarditis
      • Haemochromatosis
      • Sleep apnoea
      • Heart failure
        • Advanced heart failure
    • Treatments
      • Common types of medication
        • Herbal remedies, over-the-counter medicine and supplements
      • Having a device
      • Types of surgery
    • Information resources
      • Order information resources
      • Request resources for a hospital or GP
      • Look up a medical word
  • Living with cardiomyopathy
    • How we can help you
      • Speak to a nurse
      • Telephone peer support (Heart to Heart)
      • Support groups
        • Join a Facebook Group
        • Find a support group
          • Cardiac Amyloidosis (ATTR-CM) Online Support Group
          • ARVC (inc. ALVC & ACM) Online Support Group
          • Advanced Heart Failure (Towards Transplant) Online Support Group
          • Cardiomyopathy With Atrial Fibrillation Online Support Group
          • Birmingham & West Midlands Support Group
          • Bridgend Support Group
          • Bristol & Surrounds Support Group
          • Central London Support Group
          • Cheshire & Merseyside Support Group
          • Coffee & Catch Up
          • CRT Devices Online Support Group
          • DCM Online Support Group
          • Devon Support Group
          • East Anglia Support Group
          • East London Support Group
          • Genetics & Cardiomyopathy Online Support Group
          • Hampshire Support Group
          • HCM Online Support Group
          • Hertfordshire & West Essex Support Group
          • ICD Online Support Group
          • Kent Support Group
          • LVNC/Hypertrabeculation Online Support Group
          • Leeds & York Support Group
          • Loved Ones Online Support Group
          • Manchester Support Group
          • Medications & Cardiomyopathy Online Support Group
          • North East Support Group
          • North London Support Group
          • North & North East Scotland Support Group
          • Northern Ireland Support Group
          • PPCM Online Support Group
          • Sheffield & South Yorkshire Support Group
          • South East Wales PPCM Support Group
          • South London Support Group
          • Staffordshire Support Group
          • Sussex Support Group
          • Swansea Support Group
          • Takotsubo Online Support Group
          • West London (including Surrey & Middlesex) Support Group
          • West Scotland Support Group
        • Become a support group leader
      • Our podcast
      • Cardiomyopathy UK National Conference
    • Families and young people
      • Parents, caregivers and family members
      • Support for carers
      • Young People
        • Starting a new job
        • Transitioning to adult care
        • Starting university or college
        • Support for you
        • Our Youth Panel
    • Lifestyle and exercise
      • Eating healthily
      • Keeping active
    • Emotional wellbeing
      • Getting support with your wellbeing
    • Get practical support
      • Benefits and financial support
        • Benefits
        • Cost of living
        • Financial support if your work is affected
      • Driving
      • Life insurance
      • Returning to work and your rights
      • Travel insurance
  • Our research & campaigns
    • Getting better treatment
      • Our Change Agenda
      • Change Makers
      • Cardiac screening
      • Our positions on policy
      • Our work with parliamentarians
    • Raising awareness
      • Awareness campaigns
      • Cardiomyopathy symptoms
      • Share your story
    • Understanding more
      • Our national survey
      • Our research
      • Research partnerships
        • CureHeart
        • Crucial Study
      • Take part in research
        • BRITISH Study
        • MyClimb Study
      • Future research priorities
      • For researchers
        • Research grants
  • Support us
    • Fundraise
      • Take on a challenge
        • Aberdeen Kiltwalk 2025
        • Chiltern 50 Ultra Challenge
        • Cotswold Way Ultra Challenge
        • Drayton Manor 5K & 10K
        • Edinburgh Kiltwalk 2025
        • Great Manchester Run Half Marathon 2025
        • Hampton Court Palace 10K
        • London 2 Brighton Ultra Challenge
        • Oxford Half Marathon 2025
        • Peak District Ultra Challenge
        • Run Alton Towers 5k & 10k
        • Run Thorpe Park 5k
        • Skydive in Brigg
        • South Coast Ultra Challenge
        • TCS London Marathon 2026
        • Thames Bridges Trek
        • Thames Path Challenge 2025
        • Ultra Challenge Series 2025
        • Walk with your Heart
        • 2024 Wolverhampton 10k
        • ASICS London 10k
        • Adidas Manchester Marathon
        • BHF London to Brighton Bike Ride 2024
        • Birmingham Running Festival
        • Bournemouth Half Marathon
        • Brighton Marathon 2026
        • Bungee Jumps
        • Cardiff Half Marathon 2023
        • Chase the Sun 5k & 10k
        • Cotswold Way Challenge
        • Great North Run
        • Hackney Half 2021
        • Hackney Half 2024
        • Hampton Court Palace Half
        • Inflatable 2.5k - 5k - 10k - 15k
        • Isle of Wight challenge
        • Jurassic Coast Challenge
        • Glasgow Kiltwalk 2025
        • London Landmarks Half Marathon 2026
        • London Winter Walk 2024
        • London to Brighton Challenge
        • London to Paris
        • Manchester Half Marathon
        • National Three Peaks Challenge
        • Paris Marathon 2025
        • Peak District Challenge
        • Royal Parks Half Marathon
        • Run Bournemouth 2025
        • Run Locally
        • Run Solihull 2023
        • Sheffield 10k
        • Santa in the City 2023
        • Skydives
        • South Coast Challenge
        • Supernova London
        • Thames Path Challenge
        • Thames Path Challenge
        • Warwick Half Marathon 2024
        • Yorkshire Three Peaks
      • Do your own thing
        • Fundraising Made Simple
        • Fundraising Resources
        • 30-Day Challenge
        • Celebrate a special occasion
        • Bake a Difference
          • Bake a Difference at Home
          • Bake a Difference at School
          • Bake a Difference at Work
      • Give in memory
        • Create a Tribute Page
        • Funeral collections
        • Grief Support
      • Become a corporate partner
      • Clubs and Societies
      • Give a gift in your Will
      • Cardiomyopathy research appeal
    • Volunteer
      • Find your volunteer role
      • Enquire about volunteering
    • Stay in touch
      • Contact us
      • Read MyLife magazine
    • Donate
      • Shop
  • About us
    • Our impact
    • Our approach
    • Our five year strategy
    • Work for us
    • Our people
  • For professionals
  • News & blogs
    • Latest news
      • "I have so much gratitude for my health, and for the sheer joy of running"
      • 12 Days of Christmas Challenge
      • 2021 ESC Guidelines updates for heart failure
      • A 25th anniversary for Patricia's heart transplant
      • A Bright Future Together
      • A Good Night's Sleep
      • A Statement on Evusheld
      • Amy's story: friendship, peer support and climbing mountains
      • An Update on Mavacamten
      • Are you ready for a challenge?
      • Autumn 2022 Covid booster
      • Autumn 2023 Covid 19 Booster vaccination
      • Autumn 2024 COVID-19 Booster Vaccination
      • Beating For Two
      • Becoming a research funder
      • Boston scientific CRT-P recall
      • Cardiomyopathy UK announces the appointment of new CEO, Anna Tomlinson
      • Cardiomyopathy and the COVID-19 Vaccination
      • Cardiomyopathy and the COVID-19 Vaccine
      • Cardiomyopathy and the menopause
      • Celebrating three years of Coffee & Catch Up
      • Change the World of Cardiomyopathy - Our Urgent Appeal
      • Charity’s Update on COVID-19
      • Charlie's Story
      • Charlotte's Story
      • Chloe's Story
      • Christian Eriksen's cardiac arrest
      • Claire's Story
      • Cold weather
      • Coping With Tiredness and Fatigue
      • Coping with stress and your mental wellbeing
      • Coronavirus - update on our policies and services
      • Coronavirus Update
      • Coronavirus Update
      • Coronavirus
      • Covid-19 mRNA vaccines statement
      • CureHeart
      • Dougie and Pete - The Marathon des Sables
      • Emily's Story
      • Fasting During Ramadan
      • Fiona's Story
      • Getting your flu vaccine
      • Good luck Team Scouse - Remembering Alex ‘Scouse’ Pickett
      • Green light for first Cardiomyopathy Drug
      • Gwen's story
      • Happy Volunteers' Week!
      • Hay fever and cardiomyopathy
      • How To Cope In Warmer Weather
      • How peer support can help you feel better with cardiomyopathy
      • International Womens Day - celebrating our founder
      • Introducing our new trustee, Libby Jarman
      • Jaana's Story
      • Jamie's Story
      • Jane's Story
      • Jane's Story
      • Jazmin's 30-day Challenge
      • John's Story
      • Karen's 30 Day Home Challenge
      • Karen's Story
      • Karen's Story
      • Kyren's Story
      • Lauren's Story
      • Lisa's Story
      • Lucy's Story
      • Mark's Story
      • Marty's Story
      • Mavacamten - one year on
      • Mavacamten for Obstructive HCM approved for Scotland
      • Meet Tash
      • NICE recommends Mavacamten for Obstructive HCM in new draft guidance
      • NICE releases draft guidance for new treatment for chronic heart failure
      • Natriuretic Peptides
      • New Guidelines on Management of Cardiomyopathy
      • New Heart Hive research on the effect of COVID-19 on people with Cardiomyopathy
      • New smartphone can interfere with ICD’s and pacemakers
      • Organ Donation Week
      • Organ Donation Week-'June and I count our blessings every day'
      • Organ Donation in England
      • Our 30 Day Home Challenge Journeys
      • Our Support Group Meetings This Month
      • Our latest My Life magazine!
      • Paige's Story
      • Paul's guaranteed to get a runner's high
      • Positive results for new HCM drug
      • Queen's Birthday Honours list for Alison Fielding
      • Royal Pharmaceutical Society calls for Government action to tackle medicines shortages
      • Ruby's Story
      • Scotland gives green light for new cardiomyopathy drug
      • September Steps 2021 - Jodie's Story
      • Sophie's Story
      • Steph's story
      • Stephen's Story
      • Sue's Story
      • Tafamidis approved by NICE
      • The top ten research priorities for cardiomyopathy published
      • Third Place for Hollis in Himalayan 100 Challenge
      • Tim's Story
      • Tina's Story
      • Tony's Story
      • Tracy's Story
      • Walking 500 miles for Jenny
      • Weight loss injections
      • What to do if you can't get a GP appointment
      • Why you should give regularly
      • Wireless in-heart device
      • Working in Scotland
      • Zai's Story
      • clone of John's story
    • Tips and Advice
      • Amiodarone
      • Coping with a diagnosis of cardiomyopathy
      • Coping with the cold weather
      • Exercise in Children
      • Finding the right Travel Insurance
      • Free Vitamin D
      • Healthy Eating
      • ICD's- Your Questions Answered
      • Ischaemic Cardiomyopathy
      • Myocarditis in children
      • Smoking
      • Tips and Advice
      • What does Ischaemic Cardiomyopathy mean?
      • What is Cardiac Remodelling?
    • Media contact
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